Zach Seymour is an expert at living with mitochondrial disease. He doesn’t have mito himself, but both his mother and brother do.
When Zach was 12, he was running the household. He was doing the family’s cleaning, helping raise his younger brother, and leaning on his grandparents to help balance everything.
During this time, Zach’s Mom was suffering from chronic fatigue and sleeping for 14 hours a day. As a single mother of two, she worked at several jobs to try to make ends meet — when she could.
She suspected mitochondrial disease but was unable to convince doctors in their small, rural town that this was a possibility. It was demoralizing, frustrating, and debilitating, as this lack of willingness to consider mito left them without a diagnosis.
No diagnosis also meant no treatment, relief, support, or hope.