MitoCanada is Canada’s only registered health foundation dedicated to transforming the lives of individuals, families and caregivers with mitochondrial disease.

Our mission is to energize and support patients, families, and healthcare providers across Canada through education, support, awareness, and transformational research. We aim to be a reliable and trusted source of information and support for Canadians impacted by mitochondrial disease.

We dedicate ourselves to pursuing our mission by practicing and promoting the following core values, which reflect a shared view of how we want to operate and be seen by others. These include:

1. Collaboration – We love working together as a team, where different skills come together to reach our goals, standing in solidarity with families and patients on their journey

2. Generosity – We happily share what we have with our families, scientists, supporters, and everyone helping our mission, without holding back, to support our mito-community.

3. Openness—We always want to learn more and share information to achieve our mission, ensuring that families and patients can access the knowledge and resources they need.

4. Inclusivity—We welcome and appreciate people from all backgrounds and cultures, valuing their ideas and perspectives as we move forward together. We foster a community of solidarity and support for those impacted by mitochondrial diseases.

Every day, we support those living with mitochondrial disease with information, initiatives, and opportunities to inspire, empower, and connect while enhancing quality of life. We develop education and awareness programs and support patient-focused transformational research.

We are proud of the work we’ve done but know there is still so much more to do.

MitoCanada promises to continue to work toward its vision with courage, innovative thinking, and uncompromising commitment as we embrace our responsibility to:

  • increase awareness of mitochondrial disease among the public, healthcare providers, government, insurance providers and employers
  • ensure access to diagnostic tests that enable early and accurate diagnosis to minimize lifelong, irreversible impairments
  • advance effective treatments that offer hope and preserve quality of life
  • grow our Canadian data registry that collects data on disease-specific symptoms, diagnostic journeys, experiences, therapies, and outcomes
  • lead community-driven research to deepen our understanding of the mitochondrial disease community’s priorities and lived experiences, enhancing and sustaining support efforts.