In Loving Memory: Evan Penny Leaves a Legacy of Strength and Inspiration
Rare Disease Day – February 29th is the rarest day on the calendar
MitoSpin 2024 – Canadians are Spinning Across Canada to Raise Funds and Awareness for MitoCanada | Global News Calgary
MitoSpin 2024 – A Cross-Country Challenge to Raise Funds and Awareness for MitoCanada | CTV News Calgary
Host Maureen McGrath of the Sunday Night Health Show interviews, Hazel Currie.
Host Maureen McGrath of the Sunday Night Health Show interviews, Hazel Currie.
CHQR’s “Mornings with Sue and Andy” featuring Dr. Tarnopolsky (February 28)
Dr Mark Tarnopolsky takes to the airwaves this Rare Disease Day (February 28) to raise awareness about mitochondrial disease and dysfunction, the work MitoCanada is doing, and provides listeners with some helpful tips to promote good mitochondrial health. Take a listen:
Mitochondrial disease: What it feels like
Jodi Young, one of our 2022 MitoScholars, spoke to Healthing about growing up watching her mom battle mitochondrial disease. “Jodi Young wasn’t yet ten when her mom started having seizures. It took a year of testing and trips to the hospital before they received diagnosis that would impact the entire family: mitochondrial disease. Since the genetic condition is passed to children from the mother, that meant Jodi and her sister had the condition as well.” Read more about Jodi’s story.
The Leadership Standard Podcast – Blaine Penny and MitoCanada
In this leadership podcast, MitoCanada Board Director, Blaine Penny, shares his involvement in rare disease advocacy, motivation in establishing our Foundation and fulfilling a vision to build a supportive and united mito community. Blaine shares how he harnessed his love of running to raise awareness of MitoCanada’s efforts and in earning numerous Guinness World Records has raised funds and amplified MitoCanada’s voice across our country and beyond.
MitoCanada Leadership
Listen to the inspiring words of our new leadership team, Kate Murray and Catherine Mulvale, who sat down with MitoAction for an honest discussion about the courage of the MitoCommunity, the challenges of getting a diagnosis and care, the many unmet needs that must be addressed to improve quality of life, and the hope that fuels our future.
Mitochondrial disease does not just affect the patient the entire family has to find their way through the journey
Jon Paradowski and Jayda Back were on CTV Morning Live in Regina to discuss mitochondrial disease, and the Faces of Mito project.
Linking 112 runners together to run a marathon is tricky
Blaine Penny, CEO of MitoCanada, appeared on CBC Radio One’s Eyeopener radio show to discuss MitoCanada’s 13 Guinness World Records, and how we use this novel approach to raise awareness for mitochondrial disease and funds to support transformational research, including tying 112 runners together to claim the title of Most Linked Runners to Complete a Half Marathon.
Canadians look to raise the most money ever while running a marathon
Six Canadians are looking to raise the most money ever raised while running a marathon. On Sunday, May 31 at 8 a.m. MDT, the runners will broadcast the Guinness World Record attempt live on Facebook and YouTube as part of the virtual Calgary Marathon Charity Challenge to raise awareness and funds for mitochondrial disease.
The pandemic has interrupted world record attempts—and spawned new ones
Macleans article featuring Melissa Anne Paauwe and Reinier Paauwe about Guinness World Records being impacted by COVID. Mel and Ren were planning a Guinness World Record for a 3-legged half marathon attempt in support of MitoCanada at the Calgary Marathon, but have postponed the attempt to 2021. However, the show goes on! In lieu of the Calgary marathon being canceled, TEAMmito has come up with a new virtual Guinness World Record being attempted on May 31 for “The Most money raised whilst running a marathon distance”.
Blaine Penny, CEO of MitoCanada
Shares the heartfelt story of his son’s diagnosis with mitochondrial disease which completely changed the trajectory of not only his life but of his family’s too. That change led to co-founding Mito Canada, a not-for-profit focused on raising awareness on mitochondrial disease.
Saskatoon parents frustrated their son’s medication could cost $1,000 per month
Patrick and Leanne Wilson discuss the financial stress caused by the cost of medication for their son Tanner, who has Leigh’s Disease. The drugs prescribed for their son are currently not covered by the Saskatchewan Ministry of Health.
Canadian Running Magazine | Thirteen Guinness Records Fall at the Scotiabank Toronto Waterfront Marathon
Penny was running to raise awareness and funds for mitochondrial disease. He and his wife, along with some other affected families, started MitoCanada nine years ago, not long after his son Evan, who is now 14, was diagnosed with the condition, which has left him a quadriplegic and non-verbal.
MitoCanada sets a new unofficial Guinness World Record title at the Calgary (virtual) Marathon and raises $73,000 in 6 hours!
After the physical Calgary Marathon was cancelled and went virtual, MitoCanada worked with Guinness to establish a new record title that could be completed virtually. A group of six Calgary-based runners competed for a new Guinness World Record for ‘The most money raised whilst running a marathon distance’ yesterday on May 31, 2020.
