Jonathan has become the most active member of his own care team, shaping his diet and fitness regimen meticulously, armed now with the full knowledge required to do so.
This is a disease that, Dr. Tarnopolsky explains, requires constant management, much like other chronic conditions like diabetes. CPT II deficiency is not curable, but with the right approach, it’s possible to live a healthy life not limited by the condition.
Ongoing research is also providing medical innovations to help manage the disease, although Jonathan prefers to go purely the route of lifestyle-as-treatment. He continues to exercise religiously, spending time on the treadmill or stationary bike when the weather keeps him indoors.
And when he’s out on his bicycle, he knows what food to pack and when to consume it to keep his enzyme levels in check.”
In recent years, Jonathan has gotten involved with MitoCanada, the national foundation supporting those living with mitochondrial disease, and he appreciates that there’s an active community to encourage research and provide support for Canadians living with all forms of mitochondrial dysfunction.