Collaboration to Drive Progress
MitoCanada has built strong partnerships with organizations across Canada and around the world, including foundations, patient groups, academic institutions, innovators, and industry. Together, we are advancing research, knowledge, and care for the mito community, and moving closer to a world where all lives are powered by healthy mitochondria.
Canadian Partners
Discovery DNA
Using state-of-the-art next generation sequencing technologies, Discovery DNA performs comprehensive genetic testing services, which includes whole exome and genome sequencing as well as mitochondrial genome testing with fast turnaround times and strong genetic counselling support.
LHON Canada
LHON Canada is a “Patient Support Group,” supporting individuals and families affected by Leber’s Hereditary Optic Neuropathy from coast-to-coast. LHON Canada believes there “is life after vision loss”, and we work to ensure our community has the confidence, skills, and opportunity to fully participate in life.
Lumiio
Lumiio is empowering health communities through disruptive technology combined with classical research methods to ultimately improve health and quality of life. Lumiio is finding and filling the gaps between members of health communities to enhance collaboration, improve communication, and unlock the inherent power of communities and provide better patient outcomes through transformative treatments and digital tools.
Mito2i (Mitochondrial Innovation Initiative)
Mito2i is a Canadian-based network of researchers, clinicians, patients and advocates, academic institutions, NGOs and industry partners to transform the understanding of the role of mitochondria in human health and disease. Together with its partners, Mito2i aims to deliver supporting technologies, integrative platforms, and interdisciplinary knowledge that will lead to a paradigm shift in the way clinicians approach the diagnosis and treatment of disease and consider the potential role of mitochondrial dysfunction in multiple, prevalent medical conditions. Through innovation grants, they aim to advance research, innovation and treatment. They focus on training the next generation of mitochondrial research leaders and building awareness in mito health and disease research through symposiums, workshops and conferences.
International Partners
CureMito
Cure SURF1 Foundation is a USA-based non-profit founded in 2018 by a group of families determined to fight for our children’s lives. In 2021, the organization changed its name to the Cure MITO Foundation. Cure MITOs primary focus is advancing research towards a cure for Leigh syndrome and eventually for mitochondrial disease as a whole. A successful outcome will mean not only hope for children diagnosed with Leigh’s, but also life-saving treatments for future generations impacted by this disease.
International Mitochondrial Patients (IMP)
Since 2011, IMP has brought together 16 national patient organizations from around the world and facilitated international discussions about mitochondrial diseases. The national patient organizations support and advocate for patients, fund research, increase awareness and improve education in their country. By joining forces, IMP represents a large group of patients, creating a stronger voice on an international level, and is an international bridge between patients, clinicians, scientists, industry and policy makers.
MitoAction
MitoAction is a USA-based non-profit organization founded in 2005 by patients, parents and Boston hospital healthcare leaders. Their mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes to children affected by mitochondrial disease.
MitoFoundation
The Mito Foundation is an Australian-based non-profit dedicated to being the pre-eminent source of energy, hope and support for the mito community, while seeking a cure. Through grants and scholarships, the Mito Foundation funds essential research into the prevention, diagnosis, treatment and cures of mitochondrial disorders, and increases awareness and education about this devastating disease.
Mitochondrial Care Network (MCN)
The MCN represents a group of physicians that have expertise and experience in providing coordinated, multidisciplinary care for patients with genetic mitochondrial disease. The network was created to help improve the quality of mitochondrial patient care and implement best practices and standards of care in mitochondrial medicine. Over time, the MCN plans to determine the gaps in mitochondrial disease care and help improve diagnosis, treatment and patient outcomes.
Mitochondrial Medicine Society
The Mitochondrial Medicine Society was founded in 1998 and represents an international group of physicians, researchers and clinicians working towards advancing education, research and global collaboration in clinical mitochondrial medicine.
MitoWorld
MitoWorld ™ is a USA-based web platform that brings together the latest research and emerging fields associated with mitochondrial research, patient support, health resources, and the growing understanding of the importance of healthy energy production in medicine and health.
The platform aims to make more public the researchers and medical practitioners worldwide who view mitochondria as a new lens for medicine and health, taking its place alongside DNA research.
United Mitochondrial Diseases Foundation (UMDF)
UMDF is a USA-based non-profit dedicated to fighting mitochondrial disease. They are driven by a nationwide community of ambassadors solely focused on supporting patients and families affected by mitochondrial disease. They are committed and energized to make a difference by funding the best science no matter where it is found in the world and providing critical programs and services to the patient families they serve. UMDF has 90 ambassadors across the United States supporting patient families. They have funded 125 research projects and helped generate $150 million in government grants.
