We have curated a list of national and regional support programs and foundations throughout Canada to help mitochondrial disease patients and caregivers source information and services.
Below you will find a resources listing for Ontario.
InnoviCares – The innoviCares card is a free prescription savings card available to all Canadian residents, and is funded by participating pharmaceutical manufacturers.
Assistive Devices Program – ADP helps people with long-term physical disabilities pay for customized equipment, like wheelchairs and hearing aids.
ODSP – The Ontario Disability Support Program offers money to help you and your eligible family members with living expenses, including food, and rent; health benefits, including prescription drugs and vision care; and employment support to help you find and keep a job or advance your career.
Spiritual & Religious Care Department at Sick Kids – The CIEFCC works with patients, families and staff to advance the delivery of care that is centred on the needs of patients and their families.
YouthLink – Provides emotional counselling for variety of problems.
Direct Funding, Self-Managed Attendant Services of Ontario – allows individuals with physical disabilities to self-manage their attendant services. This program provides financial resources to eligible participants, enabling them to hire and supervise their own personal support workers or attendants, who assist with activities of daily living
Home Care Providers List of Ontario
CarePoint Health Ontario – CarePoint Health consists of a collaborative team of primary care physicians and health professionals dedicated to enhancing the health and wellness of Mississauga and its neighbouring communities. They link primary care providers and patients to a variety of programs and resources, designed to meet individual needs regardless of financial ability.
Sick Kids Family Resource Program – CIEFCC Care works with patients, families and staff to advance the delivery of care that is centred on the needs of patients and their families.
Pro Bono Law Ontario at Sick Kids – Helps low/middle income families deal with legal challenges impacting patient health/family capacity to care for children.
Telehealth Ontario (1-866-797-0000) – Access safe, high-quality care and avoid unnecessary visits to the emergency room. This service is an easy way to get connected to care you or your loved ones need, but it does not replace your other touch point with your health care provider. In a medical emergency call 911 immediately.
MedsCheck – Talk with pharmacist for information on your prescription drugs.
Home and community care information – Home and community care services are for people of all ages who require care in their home, at school or in the community.
Tool for searching healthcare services – Find the health care services you need, when and where you need them.
Patient Education and Engagement at the University Health Network – Patient Education and Engagement is dedicated to providing you with the materials and resources you need to make informed health decisions.
The Kaitlin Atkinson Family Resource Library – Provides materials on child health, illness and injury, and parenting.
Financial Help for Medications in Ontario – Children’s Hospital for Medications in Ontario
Financial Tips for Parents of Children with Special Needs – Children and youth with special needs have medical, emotional, developmental, mental or behavioural problems that require ongoing help and support. Ontario has a number of provincial programs and the federal government has various tax deductions, credits and benefits available to help families and caregivers of children and youth with special needs. This fact sheet outlines the main sources of financial help, and provides some tax information.
Search engine – Offers a directory of services which support people living with intellectual or physical disabilities; for families and caregivers as well as individuals.
