FOLLOW US ON FACEBOOK

TeamMito is a grassroots movement that has a life of its own. Events are constantly being added and reported on. The TeamMito Facebook page serves as a hub for interaction with the public and provides a forum to organize and showcase TeamMito events and participants. Follow us on Facebook to keep abreast of the latest news and opportunities to join our team.

Follow Us: https://www.facebook.com/MitoCanada/

Calling all mito patients!

Canada Health Infoway is seeking to understand what challenges you currently face with accessing specialty care, focusing specifically on referrals and any consults that occur between health providers prior to a referral. They want to talk to you if you:

1 Have required at least 3 referrals to specialists or treatments from a primary care provider in the past year, or have been referred from a hospital to a rehab or long term care facility, OR

2 Have experienced challenges in getting the access to the appropriate service because of a referral in the last 2 years.
If you are willing to participate, please complete the short survey at deloitte-infoway.typeform.com/to/BWEeOy

The survey contains eight questions, and will take 5 minutes to complete. The research team at Deloitte will review all survey responses and conduct additional screening to select participants that offer a diverse mix of perspectives based on known differences in referral experiences.

Please consider participating. This research helps inform decisions about how care can be improved.
...

View on Facebook

Join the Conversation Dec 6

Here is your chance to have a say about a national toolkit for supporting parents of complex children and youth. Please register for "Join the Conversation- Building a National Toolkit to Support Parents of Medically Complex Children and Youth" on Dec 6, 2017 11:00 AM EST at: attendee.gotowebinar.com/register/5663013034784801538
...

View on Facebook

On This National Day of Giving

Meet Anakha. At 13 months, Anakha was diagnosed with Multiple Mitochondrial Dysfunction Syndrome, Type 3. At the time of her diagnosis, only 3 other children were known with this condition, and sadly all had passed away before they were 18 months old. Anakha’s story started when, at the age of nine months, she suffered a severe metabolic crisis that caused extensive brain damage. Anakha abruptly lost her ability to move, to see and to speak. No one expected her to survive. But, at 3 years old, this bright-eyed and determined child is beating the odds.

There are thousands of Canadians, like Anakha and her family, that benefit when YOU take action in the fight to improve diagnosis and treatments and ultimately to find a cure for mitochondrial diseases.

While each family’s experience with mitochondrial disease is unique, no one should have to make this journey alone and without hope. We first met Anakha and her parents, Savitha and Ajay, at MITO2017, MitoCanada’s national conference, where delegates learned of exciting Canadian research discoveries that are leading to a better understanding of mitochondrial disease and to future treatments. Today, Savitha and Ajay are active mito disease champions, joining MitoCanada and a growing network of advocates to ensure that the voices of the mitochondrial disease community are heard.

On the GivingTuesday, please consider making a tax-deductible gift to empower MitoCanada to continue to raise awareness, to educate and to fund research on behalf of Canadians with mitochondrial disease. Together, with patients and families like Anakha’s, whose stories compel us to make even greater progress in 2018, YOU can make a difference. Click here to donate now www.canadahelps.org/en/dn/32751
...

View on Facebook