We have curated a list of national programs throughout Canada to help mitochondrial disease patients and caregivers source information and services.

All hands on deck needed! We are a mighty organization, but a tiny one, and we need your help in keeping these lists up to date. If you find a link that is broken, please submit the link error here. Please provide the following information:

  • Link to the page on mitocanada.org where you found the broken link
  • The name of the link that is broken
  • A new link (if possible). If you found an updated link for that resources, please send the link, as it can be difficult to find new links

Benefits Support

InnoviCares – The innoviCares card is a free prescription savings card available to all Canadian residents, and is funded by participating pharmaceutical manufacturers.

NIHB (Health Canada Non-Insured Health Benefits Program)

NIHB (Health Canada Non-Insured Health Benefits Program)

IFHP (Interim Federal Health Program) (Refugees)

Child Disability Benefit

Canada Child Benefit

Disability Tax Credit

Canada Disability Savings Grants and Bonds

Education Funding for People with Disabilities

Disability Supports Tax Deduction

Tech for Good, from the March of Dimes, provides people of all ages customized recommendations, training and support on mobile devices and related assistive technology in order to help overcome barriers to digital accessibility.

Tech for Good – Provides people of all ages with professional assistance so they can independently use or control their mobile phone and tablet

Tech for Impact Fund – Helps individuals across Canada with disabilities with low income to obtain technology

Hi, Tech – Virtual digital literacy program that empowers individuals with disabilities to build their digital skillset and bridge online connections

Peer 2 Peer Resource Network  (Rare Disease Foundation)

Canadian Red Cross Home Care Services

Access 2 Card – Support person is given free admission into participating movie theatres (Cineplex) when individual with patient pays regular admission

GARD (Genetic and Rare Diseases Information Centre) (American, but good for informational resources)

Canadian Directory of Genetic Support Groups (Search by Group/Genetic Disorder)

Health Sciences Library (tool to search scientific info on disease)

General Information on Federal Programs on Disabilities

Canada Disability Savings Act – Know your Rights

Accessibility Resource Centre – Tools to Help Improve Accessibility for People with Disabilities:

Orpha.net (information resource on Orphan Drugs for the treatment of rare diseases)

Rare Diseases Clinical Research Network (National Institutes of Health) Rare Disease Search Tool