We have curated a list of national programs throughout Canada to help mitochondrial disease patients and caregivers source information and services.

InnoviCares – The innoviCares card is a free prescription savings card available to all Canadian residents, and is funded by participating pharmaceutical manufacturers.

NIHB (Health Canada Non-Insured Health Benefits Program)

In this section, MitoCanada will provide drug access information on new therapies available for mitochondrial diseases.

  1. Ultragenyx – Triheptanoin (DOJOLVI)

Tech for Good, from the March of Dimes, provides people of all ages customized recommendations, training and support on mobile devices and related assistive technology in order to help overcome barriers to digital accessibility.

Tech for Good – Provides people of all ages with professional assistance so they can independently use or control their mobile phone and tablet

Tech for Impact Fund – Helps individuals across Canada with disabilities with low income to obtain technology

Hi, Tech – Virtual digital literacy program that empowers individuals with disabilities to build their digital skillset and bridge online connections

Peer 2 Peer Resource Network  (Rare Disease Foundation)

Canadian Red Cross Home Care Services

Access 2 Card – Support person is given free admission into participating movie theatres (Cineplex) when individual with patient pays regular admission

GARD (Genetic and Rare Diseases Information Centre) (American, but good for informational resources)

Canadian Directory of Genetic Support Groups (Search by Group/Genetic Disorder)

Health Sciences Library (tool to search scientific info on disease)

General Information on Federal Programs on Disabilities

Canada Disability Savings Act – Know your Rights

Accessibility Resource Centre – Tools to Help Improve Accessibility for People with Disabilities:

Orpha.net (information resource on Orphan Drugs for the treatment of rare diseases)

Rare Diseases Clinical Research Network (National Institutes of Health) Rare Disease Search Tool