We have curated a list of national programs throughout Canada to help mitochondrial disease patients and caregivers source information and services.
All hands on deck needed! We are a mighty organization, but a tiny one, and we need your help in keeping these lists up to date. If you find a link that is broken, please submit the link error here. Please provide the following information:
- Link to the page on mitocanada.org where you found the broken link
- The name of the link that is broken
- A new link (if possible). If you found an updated link for that resources, please send the link, as it can be difficult to find new links
Financial Support
NIHB (Health Canada Non-Insured Health Benefits Program)
IFHP (Interim Federal Health Program) (Refugees)
Canada Disability Savings Grants and Bonds
Education Funding for People with Disabilities
Disability Supports Tax Deduction
Emotional Support
Peer 2 Peer Resource Network (Rare Disease Foundation)
Physical Support
Canadian Red Cross Home Care Services
Social Support
Access 2 Card – Support person is given free admission into participating movie theatres (Cineplex) when individual with patient pays regular admission
Informational Support
GARD (Genetic and Rare Diseases Information Centre) (American, but good for informational resources)
Canadian Directory of Genetic Support Groups (Search by Group/Genetic Disorder)
Health Sciences Library (tool to search scientific info on disease)
General Information on Federal Programs on Disabilities
Canada Disability Savings Act – Know your Rights
Accessibility Resource Centre – Tools to Help Improve Accessibility for People with Disabilities:
Orpha.net (information resource on Orphan Drugs for the treatment of rare diseases)
Rare Diseases Clinical Research Network (National Institutes of Health) Rare Disease Search Tool