We have curated a list of national programs throughout Canada to help mitochondrial disease patients and caregivers source information and services.
InnoviCares – The innoviCares card is a free prescription savings card available to all Canadian residents, and is funded by participating pharmaceutical manufacturers.
Non-Insured Health Benefits (NIHB) – The Health Canada NIHB program provides eligible First Nations and Inuit clients with coverage for a range of health benefits that are not covered through other social programs, private insurance plans and provincial or territorial health insurance.
In this section, MitoCanada will provide drug access information on new therapies available for mitochondrial diseases.
- Ultragenyx – Triheptanoin (DOJOLVI) – DOJOLVI is Canada’s first and only prescription drug to treat long-chain fatty acid oxidation disorders (LC-FAOD) in children and adults.
Non-Insured Health Benefits (NIHB) – The Health Canada NIHB program provides eligible First Nations and Inuit clients with coverage for a range of health benefits that are not covered through other social programs, private insurance plans and provincial or territorial health insurance.
IFHP (Interim Federal Health Program) – Provides limited, temporary coverage of health-care benefits to people who aren’t eligible for provincial or territorial health insurance.
Child Disability Benefit (CDB) – The CDB is a tax-free monthly payment made to families who care for a child under age 18 with a severe and prolonged impairment in physical or mental functions.
Canada Child Benefit (CCB) – The CCB is administered by the Canada Revenue Agency (CRA) and is a tax-free monthly payment made to eligible families to help with the cost of raising children under 18 years of age.
Registered Disability Savings Plan (RDSP) – The RDSP is a long-term savings plan to help people with disabilities who are approved for the Disability Tax Credit save for the future. When you open a plan, you may also get grants and bonds from the Government of Canada to help with your long-term savings.
Education Funding for People with Disabilities
Disability Supports Tax Deduction – Individuals who have an impairment in physical or mental functions and have paid for certain medical expenses can, under certain conditions, claim the disability supports deduction.
Tech for Good – From the March of Dimes, provides people of all ages customized recommendations, training and support on mobile devices and related assistive technology in order to help overcome barriers to digital accessibility.
Tech for Impact Fund – Helps individuals across Canada with disabilities with low income to obtain technology
Hi, Tech – Virtual digital literacy program that empowers individuals with disabilities to build their digital skillset and bridge online connections
Peer 2 Peer Resource Network (Rare Disease Foundation) – The Rare Disease Foundation’s Parent 2 Parent Resource Network community is comprised of groups across Canada that host round table discussions and guest speakers, many of which are webcast to the rest of the community.
Canadian Red Cross Home Care Services – The Canadian Red Cross offers personal support and homemaking services to support seniors and those recovering from illness or injury live independently.
Access 2 Card – The Access 2 card program is designed to enhance the accessibility and availability of entertainment, cultural, and recreational venues for Canadians. Learn more.
Genetic and Rare Disease Information Centre (GARD) – GARD helps the rare disease community by providing free access to reliable and easy-to-understand information through their website and through the dedicated Information Specialists in Contact Centers across America. This is an American resource, but good for informational resources.
Health Sciences Library – A tool to search scientific information on diseases.
General Information on Federal Programs on Disabilities
Canada Disability Savings Act – Know your Rights.
Accessibility Resource Centre – Tools to help improve accessibility for people with disabilities:
- Orpha.net – Information resource on Orphan Drugs for the treatment of rare diseases.
- Rare Diseases Clinical Research Network (National Institutes of Health) – A rare disease search tool.
