MitoPulse:
2 questions. 2 minutes. Your voice matters.
What Is MitoPulse?
MitoPulse is a short, ongoing microsurvey series designed to capture the questions, perspectives, and priorities of the Canadian mito community, quickly and meaningfully.
Why a “micro” approach?
We understand that time and energy are limited, especially for Canadians living with mitochondrial disease.
That’s why we’ve designed MitoPulse to be:
- Quick: complete in 2 minutes
- Simple: just 1-2 focused questions
- Accessible: Easy to participate from any device
- Ongoing: Allowing you to share your voice over time
Our MitoPulse are built to be fast yet informative, allowing us to stay closely connect to what matters to you, without adding burden to your day.
Why your voice matters
At MitoCanada, we believe that the most impactful education, support and research efforts are grounded in the lived experience of the community.
Your insights help us:
How your input will be used
Responses from MitoPulse will be carefully reviewed and analyzed to identify common themes, questions and priorities across the Canadian community.
These insights will:
A growing initiative
While we are beginning with mitochondrial transplantation, furture microsurveys may explore other areas such as:
- Diagnositic journeys
- Access to care
- Symptom management
- Emerging therapies
- Education and support needs
This allows us to continuously listen, learn, and respond to the changing needs of the Canadian mito community.
Note on privacy
Participation in MitoPulse is voluntary and responses are collected anonymously. Any insights shared publicaly will be presented in a de-identified and aggregated format.
Together, we can ensure that the future of mitochondrial research and care is shaped by the voices of those it matters most to.
