Get ready for a summer power surge!
Goodbye spring showers, hello warm weather! Summer is a time of energizing days, and here at MitoCanada, we have a busy summer ahead!
In this summer edition of MitoNews, we’re thrilled to introduce new resources and awareness initiatives. Dive into our latest Faces of Mito feature, discover insights from our new mitochondrial transfer report, get details on our ambitious Guinness World Record attempt at the Calgary Marathon, and so much more. There’s a wealth of information and updates in this newsletter, so let’s get started!
Faces of Mito: Dave and Victoria’s journey through adversity
Victoria Mosher has a superpower. Wherever she goes, she brightens people’s day with her positivity and bright smile. Victoria’s sweet, affectionate nature and relentless optimism are undeniable despite the immense adversity she’s encountered throughout her life. Diagnosed with mitochondrial disease and autism, Victoria is non-verbal, relies on a G-tube for sustenance, takes a daily cocktail of supplements to ensure adequate nutrition, and faces physical challenges due to muscle weakness. Victoria’s determination and loving nature shine through, making her a true inspiration to everyone around her.
Exploring Mitochondrial Transfer Report
Mitochondrial transfer, also known as mitochondrial transplantation or transfusion, stands at the forefront of innovative treatments for mitochondrial diseases.
While this technology holds significant promise, its use in treating primary mitochondrial diseases is still in the early stages and requires substantial research and testing. Recently, MitoCanada conducted a community consultation to gather insights and feedback from the Canadian mitochondrial community.
These valuable contributions have informed the following report. We extend our gratitude to the community for sharing their perspectives and helping us bring the patient voice to this emerging field of study.
Another Guinness World Record Attempt!
MitoCanada’s co-founder and board member Blaine Penny, along with over 15 mito running ambassadors, are aiming to break the Guinness World Record for the “Fastest Half Marathon by a Linked Team” at this weekend’s 60th Calgary Marathon.
Their goal is to raise $60,000 to support MitoCanada’s initiatives. Help Blaine and the team reach their fundraising goal, make a donation today!
Join Our Growing Patient Contact Registry!
The MitoCanada Patient Contact Registry is a secure database where patients with mitochondrial disease and their caregivers can share their experiences and health information.
Your data is crucial to help advance research, develop educational resources, and bring clinical trials to Canada. We need your participation to help bring effective treatments and, ultimately, cures to Canadians living with mitochondrial disease. Please join us today and be part of this vital initiative!
2024 Healthcare Trends in Mitochondrial Disease
In our review of healthcare trends in mitochondrial disease for 2024, we highlight advancements in precision medicine, digital health technologies, interdisciplinary collaboration, and patient-centred care models. These innovations are setting new standards in the treatment and management of mitochondrial diseases. Take a look!
