Hi, my name is Cindylynn. I live in Cornwall, Ontario with my husband and two children, Emery and Sophia. I’m also mom to my late son, Emil, who continues to inspire everything I do.

My personal connection to mitochondrial disease comes through Emil’s story. He was diagnosed with a rare mitochondrial disease called Alpers, and although his life was short, his story continues to guide me and fuel my passion to raise awareness, support families, and honour his memory in meaningful ways. What makes me passionate about this cause is knowing that Emil’s life can bring hope, understanding, and connection to others facing mitochondrial disease. I believe strongly in the power of community, and I want to help ensure that families affected never feel alone in their journey.

I enjoy camping, skiing, and simple board game nights with my family,  time together that has become even more meaningful since learning just how short life can be. I also take great joy in step dancing, something I’ve been doing for decades, as it’s a way to stay active and connected to tradition.

My vision for MitoCanada is to help strengthen awareness and build a supportive network across the country. By sharing stories, raising our voices, and working together, I believe we can bring hope, connection, and progress to families living with mitochondrial disease.