On-line Seminars

On-line Seminars2022-09-14T11:01:54-04:00

Exercise as Medicine for Mitochondrial Health

Exercise is good for almost everyone, especially mito patients. It can improve strength, endurance and quality of life. Exercise as Medicine for Mitochondrial Health is created specifically for people living with mitochondrial disease. Dr. Mark Tarnopolsky explains how different exercises benefit those with mito, how to manage exercise after setbacks and illness, and important exercise do’s and don’ts our community should keep in mind.

Understanding Clinical Trials from the Patient Perspective | Presentation Slides

Dr. Aneal Khan explains in simple terms what clinical trials are and why they are important. He outlines the benefits and risks of participating, suggests questions participants should ask in order to make an informed decision, dispels common myths, and answers questions.

Could it be LC-FAOD?

Dr. Shailly Jain helps patients and caregivers have an informed conversation with their healthcare team about LC-FAOD (long-chain fatty acid oxidation disorder). Whether you are living with LC-FAOD, have a child with the disorder, or suspect you may have it but are not yet diagnosed, Dr. Jain explains what LC-FAOD is, how a diagnosis is made, explore treatment options, and review strategies for maximizing quality of life.

Past Education Events

MITO2021 Conference

Date: This event is closed. A recording of the days sessions will be posted shortly.
We were pleased to host the MITO2021 Conference, bringing the mitocommunity together to ask questions and learn about developments in the field of mitochondrial disease, research and medicine.

CORD Patient Partners Leadership Training

Patients and patient advocates will learn to partner effectively throughout all phases of the drug lifecycle from drug development to real-world usage.

Webcast Recording

The United Mitochondrial Disease Foundation hosted a webinar with several mitochondrial disease experts to answer questions about the coronavirus.

LHON Awareness Day Live Event Recording

Watch the first ever LHON Awareness Day, recorded on September 19, 2020. To mark the occassion, International Mito Patients (IMP) hosted a Facebook Live event: LHON: One Condition, Many Stories.

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