MitoNews Summer 2024 Part 2 banner

Things are heating up here at MitoCanada!

Welcome to our second summer newsletter! The summer rays have energized our team at MitoCanada, inspiring us to bring you even more exciting content to explore.

In this summer edition of MitoNews, we’re thrilled to introduce our 2024 mitoScholars, showcase our new Community Corner by Hala Abass, delve into Canada’s Strategy for Rare Disease Drugs, gear up for World Mitochondrial Disease Week, and share more ways you can help us ensure all lives are powered by healthy mitochondria!

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Announcing Our 2024 mitoScholars

Continuing our commitment to empower youth living with mitochondrial disease to focus on their futures and purse their educational goals, MitoCanada is proud to announce and introduce you to our four new 2024 mitoScholars.

Please read their stories about how mito has impacted their lives and their hopes for their futures!

MitoCanada extends its deepest appreciation and thanks to this year’s sponsor, Ultragenyx and the 2024 MitoSpin fundraisers for making these awards possible!

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Meet Hala Abass

Hello, my name is Hala Abass. I am a founding member of the MENA Organization for Rare Diseases in the United Arab Emirates. I had two young boys who suffered from Mitochondrial Cytopathy affecting complex (IV) of respiratory chain enzymes. Sadly, both boys have passed away.

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Canada’s Strategy for Rare Disease Drugs

Canada’s Strategy for Rare Disease Drugs represents a significant step forward in addressing the unique challenges faced by Canadians living with rare diseases. This strategy aims to improve access to necessary medications, enhance patient support, and ensure the sustainability of the healthcare system. Check out our in-depth look at what this strategy entails.

Register for our MitoCanada Patient Contact Registry!

Our secure database is where patients with mitochondrial disease and their caregivers can share their experiences and health information. Your data is crucial to help advance research, develop educational resources, and bring clinical trials to Canada. We need your participation to help bring effective treatments and, ultimately, cures to Canadians living with mito.

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World Mitochondrial Disease Week 2024

From September 16th to the 22nd, 2024, the global mitochondrial disease community will unite to raise awareness for those living with mitochondrial disease.

We have a number of activities planned to support the Canadian mitochondrial community and contribute to global awareness efforts!

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Light Up For Mito

On September 21st, 2024, landmarks around the world will be lighting up in green to celebrate World Mitochondrial Disease Week (WMDW) and raise awareness for those living with mito.

We currently have 31 locations lighting up green and 7 towns and cities proclaiming WMDW. Check out all the locations supporting our awareness week, and let us know more locations!

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Walk N’ Roll 4 Mito

Walk, run, bike, or simply move during World Mitochondrial Disease Week – September 16 to 22.

Take part in Walk N’ Roll for Mito individually, join a team or create a team with others in your community and help raise funds and awareness for mitochondrial disease. Or come join our group at Lake Aquitaine Park in Mississauga, ON on Sept. 22nd.

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Employer Matching

Did you know that employers often match donations and volunteer time, potentially doubling or tripling your impact? This means even more support for MitoCanada’s vital education, awareness, and research initiatives.
If you have made a donation or volunteered for MitoCanada this year, reach out to your HR department to see if they will match your support!
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Legacy Giving

Are you looking for a way to make a lasting impact on Canadians affected by mitochondrial disease? Have you considered a Gift of Securities donation or talking to your financial advisors about setting up a Gift of Life Insurance or Leaving a Bequest in your Will to MitoCanada? Leaving a Legacy Gift is a meaningful way to reflect your values while helping ensure the long-term success of MitoCanada.