We have curated a list of national programs throughout Canada to help mitochondrial disease patients and caregivers source information and services.

All hands on deck needed! We are a mighty organization, but a tiny one, and we need your help in keeping these lists up to date. If you find a link that is broken, please submit the link error here. Please provide the following information:

  • Link to the page on mitocanada.org where you found the broken link
  • The name of the link that is broken
  • A new link (if possible). If you found an updated link for that resources, please send the link, as it can be difficult to find new links

RETURN TO MAIN PATIENT AND CAREGIVER RESOURCES

Financial Support

NIHB (Health canada Non-Insured Health Benefits Program)

IFHP (Interim Federal Health Program) (Refugees)

Child Disability Benefit

Canada Child Benefit

Disability Tax Credit

Canada Disability Savings Grants and Bonds     

Education Funding for People with Disabilities

Disability Supports Tax Deduction

Emotional Support

Peer 2 Peer Resource Network  (Rare Disease Foundation)

Physical Support

Canadian Red Cross Home Care Services

Social Support

Access 2 Card – Support person is given free admission into participating movie theatres (Cineplex) when individual with patient pays regular admission

Informational Support

GARD (Genetic and Rare Diseases Information Centre) (American, but good for informational resources)

Canadian Directory of Genetic Support Groups (Search by Group/Genetic Disorder)

Health Sciences Library (tool to search scientific info on disease)

General Information on Federal Programs on Disabilities

Canada Disability Savings Act – Know your Rights

Accessibility Resource Centre – Tools to Help Improve Accessibility for People with Disabilities:

Orpha.net (information resource on Orphan Drugs for the treatment of rare diseases)

Rare Diseases Clinical Research Network (National Institutes of Health) Rare Disease Search Tool