MitoCanada’s 2025 Community Insights Survey

At MitoCanada, the voices of patients, families, caregivers, and researchers guide everything we do. To continue building programs, resources, and advocacy efforts that truly reflect the needs of our community, we’re launching our 2025 Canadian Community Insights Survey.

The results from this survey will directly shape our 2026 Canadian Community Insights Report, a key tool for understanding the realities of mitochondrial disease in Canada and driving change where it’s most needed.

Why Your Voice Matters

This survey was carefully designed in collaboration with individuals living with mito, parents and caregivers, and researchers. Each group provided input and guidance to make sure the questions capture what matters most.

By taking part, you will help us better understand:

  • Demographics of Canada’s mitochondrial community

  • The diagnostic journey and its challenges

  • The current mitochondrial disorder landscape

  • Experiences with the therapeutic landscape

  • Interest in clinical trial and research engagement

  • The quality of life impacts of living with mito

Your responses will fuel our efforts to advocate for better care, advance research, and support families across Canada.

How to Participate

Click the link below to take the survey. On average, it takes about 11–15 minutes to complete, and your insights will have a lasting impact on the future of mitochondrial disease support and advocacy in Canada.

Together, We Can Make a Difference

Every voice in our community matters. By sharing your experiences, challenges, and hopes, you’re helping us create a world where all lives are powered by healthy mitochondria.

Thank you for being part of this important work.