As we celebrate 15 years of MitoCanada, we’re sharing the stories of those who make this community so special. Today, we’re highlighting Jayda Back and her son, mighty Decklan!
Jayda is the proud mom of a remarkable 12-year-old boy living with mitochondrial disease. Decklan was diagnosed with Leigh syndrome at the age of five — a diagnosis that, as Jayda describes, “rocked our family’s world.” At the time, they didn’t even know what mitochondrial disease was.
Despite the devastating diagnosis, Decklan continues to defy the odds and thrive. “Life is not easy for him,” Jayda says, “but he never lets his disease stop him from trying everything.” Since day one, their family’s goal has been to give Decklan a full life — making memories every chance they have.
Jayda appreciates that MitoCanada is so invested in supporting families affected by mito. “From information about new studies and testing, to facts about mito diseases, to sharing stories about those that are affected, to fun contests and giveaways, I really appreciate it all,” she says.
Although she had heard of MitoCanada after Decklan’s diagnosis, it wasn’t until she met Richard and Megan MacDonald — some of MitoCanada’s biggest ambassadors! — at a booth during the Regina Queen City Marathon that she felt truly connected. “After meeting them, I became connected to others in the community,” says Jayda. “Being a part of this community has given us lifelong friends and connections who truly understand what we’re going through and support us unconditionally.”
Jayda has also been an incredible champion for MitoCanada. “Anytime I can bring awareness to MitoCanada and the amazing work the organization does, it makes me proud,” she says. “The more awareness we get, the more chance we’ll be able to find cures for our children and loved ones down the road.”
Jayda’s message to others in the MitoCommunity is simple: “I hope everyone who lives with mito, or is a caregiver of someone who is, takes care of themselves and truly lives every day to its fullest.”
We’re grateful to Jayda Back and family for being such an inspiring part of our MitoCommunity.
Join us in fuelling the next 15 years. Every donation helps us continue this vital work and create a future where no one faces mito alone.
