Support and Services

The Heart and Leadership of MitoCanada

Listen to the inspiring words of our new leadership team, Kate Murray and Catherine Mulvale, who sat down with MitoAction for an honest discussion about the courage of the MitoCommunity, the challenges of getting a diagnosis and care, the many unmet needs that must be addressed to improve quality of life, and the hope that fuels our future.

Listen now!

Zamplo App for Mito

Tired journaling your health information in a binder?
Want to track your health data and have it at your fingertips?

Zamplo helps you keep your health information organized ! Create virtual binders, graph your data, create reports and routines and invite caregivers to join you in tracking and managing your data.

Learn more about Zamplo!

2021 MitoCanada Community Survey

We need your energy to reduce the devastating impact of mitochondrial disease. We hope to do this by incorporating your experience, insights and ideas. Please share your experience and insights by completing the confidential MitoCanada Discovery Survey.

Start Survey

MitoCanada | Peer2Peer Support

MitoCanada has a Peer2Peer Facebook support page with over 60 members. People can communicate within this closed group to ask questions, find resources or to connect with each other.

Request joining the group »

Your Voice Matters | Mitochondrial Replacement Therapy

MRT is a new type of in vitro fertilization that aims to prevent the transmission of mitochondrial diseases by replacing mutated mitochondrial DNA in unfertilized oocytes or zygotes with normal mitochondria from a healthy donor. Your thoughts on this topic are important and matter, we want to hear from you.

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    My name is Forough and I am a PhD student in the Department of Human Genetics at McGill University in Montreal.
    I work at the Centre of Genomics and Policy (CGP) and my research revolves around ethical, societal and regulatory aspects of genome editing technologies, and more particularly Mitochondrial Replacement Therapy (MRT).

    MRT in Canada is considered a criminal offence according to article 5(1)(f) of the Assisted Human Reproduction Act (2004) which prohibits any practice that modifies the genome of “a human being or in vitro embryo such that the alteration is capable of being transmitted to descendants.” I would like to talk to you in order to identify and address multiple, inter-related questions pertaining to policy and decision-making for preventing mitochondrial diseases in Canada.

    If you are interested in sharing your story, please contact me for more details at: forough.noohi@mail.mcgill.ca   

    All the best, Forough Noohi

Mito411 – MitoAction

MitoAction-Mito411 offers live, one to one support, education, advocacy, and a direct connection with someone who understands. Mito411 volunteers speak with callers needing support and share similar experiences on how to live day to day with mito.

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    Call 1-888-MITO-411 (648-6411) to connect with a volunteer who can relate to the journey of diagnosis and the challenges of living with mitochondrial disease. Volunteers are adults with mito, parents of children with mitochondrial disorders, and caregivers. Although volunteers can speak from personal experience and have access to many resources and educational material, medical advice cannot be offered.

     

    MitoCanada has prioritized establishing a similar Mito411 service. If you are interested in becoming a Support volunteer, please contact us at info@mitocanada.org

Learn more >>

MitoAction Podcasts

Gain knowledge through the recordings of monthly toll-free teleconferences with expert speakers on topics important to the Mito community. There are more than 100 presentations available with audio resources, slides, and written summaries.

Listen Now »

Hope Air

Hope Air provides Canadians in financial need with free travel to medical care far from home.

Click here to learn more »

Give-A-Mile

Give-A-Mile is an online ‘not for profit’ that enables people to visit a palliative ill person or people with a life threatening illness through crowdfunding of flights via donations of travel loyalty miles.

Learn more »

MitoAction App

The summer of 2018 welcomed the launch of the very first mitochondrial tracking app. This unique platform will help patients and families manage the complexities of day-to-day care of mitochondrial disease, as well as facilitate patient-physician communications.

Download the app »