We have curated a list of national foundations Canada to help mitochondrial disease patients and caregivers source information and services.

All hands on deck needed! We are a mighty organization, but a tiny one, and we need your help in keeping these lists up to date. If you find a link that is broken, please submit the link error here. Please provide the following information:

  • Link to the page on mitocanada.org where you found the broken link
  • The name of the link that is broken
  • A new link (if possible). If you found an updated link for that resources, please send the link, as it can be difficult to find new links

RETURN TO MAIN PATIENT AND CAREGIVER RESOURCES

Rare Disease and Disorders Foundations 

CORD (Canadian Organization for Rare Disorders)

NORD (National Organization for Rare Disorders – US)

Rare Disease Foundation

TRials – The International Registry for Leigh Syndrome

Genetics

Mitochondrial Medicine Society

GECKO (Genetics Education Canada – Knowledge Organization) genetics and genomics education for non-genetic health professionals

CAGC (Canadian Association of Genetic Counsellors)

NSGC – The National Society of Genetic Counselors (US)

Special Needs Support Foundations 

Special Needs Information Service Online (SNIS) (Directory of service agencies and programs for children with special needs)

SMILE – Support for Youth with Disabilities and their Families (programs)

Advocacy and Legal

ARCH Disability Law Centre (Disability Legal Advocacy)

CFPDP (The Canadian Foundation for Physically Disabled Persons) (Disability Advocacy)

Wish Granting

Sunshine – Dreams for Kids (Wish Granting Foundation)

Starlight Children’s Foundation (Changing Illness Experience for Children)

Make-A-Wish Foundation (Wish Granting Foundation)

Children’s WIsh Foundation (Wish Granting Foundation)