The Evan Penny Extended Travel Award
If you’ve ever had the privilege to meet Evan Penny, you will agree his smile radiates, lighting up a room and your heart. Diagnosed with mitochondrial disease at the age of four, this once active little boy’s health took a drastic turn. Today, Evan is a spastic quadriplegic who cannot talk, walk, or feed himself. What Evan has done and continues to do is inject energy and unite a community like no other. Together with his father, Blaine, they break down barriers, set extreme challenges, and conquer them at every turn. It is this inspirational drive that we celebrate in providing this travel award. No matter the barrier, geographic or financial, this award offers three (3), patients/caregivers, the opportunity to join our annual conference. MitoCanada was brought to life when Blaine and several Canadian families attended a mitochondrial disease conference in the US. Together they channeled their energy to create an organization that would help reshape the landscape of this disease in Canada. MitoCanada was born in March of 2010, uniting families with this disease, so they no longer feel alone. This travel award strives to connect mito families, build a network of support, and seek out information that can have a positive impact on the health and wellbeing of individuals and families living with mitochondrial disease.
Each of the three (3) extended conference travel awards include:
- Free conference registration
- UP to $1500 in travel subsidy
Eligibility to Apply
- Reside in Canada
- Be or care for an individual living with a mitochondrial disease (diagnosed or undiagnosed)
- Plan to attend activities specifically focused on patient and caregiver working sessions;
- Not be recipients of our past MITO2017 patient scholarship award.
- Live outside of Ontario where the conference is hosted.
Because this grant serves as supplemental funding for the proposed conference, applicants are expected to seek out additional funding sources.
Interested parties will be asked to complete our application form, which includes writing a passage describing how they believe attending the conference will benefit and affect their life at home, describe their plans to share information learned at the conference with the community and/or clinicians back home.
The application deadline is Wednesday, August 21, 2019 at 5:00 p.m. EST. Applications are reviewed on a first come, first served basis.
Download application (Word document): MITO2019 Travel Awards Application
All applicants will receive an email notifying them of the results of their application on Friday, September 6, 2019.
Successful applicants must submit the following required documents as a single PDF file and email to email@example.com to receive payment of the Evan Penny Extended Travel Award:
- Receipts for all travel expenses up to the award offer amount (e.g., airfare, train, accommodations); and
- A Patient/Caregiver Travel Award reflection/ testimonial, not to exceed 500 words.
Successful participants are encouraged to participate in a short video interview.