{"id":15834,"date":"2026-04-02T13:06:14","date_gmt":"2026-04-02T17:06:14","guid":{"rendered":"https:\/\/mitocanada.org\/rencontrez-kailey\/"},"modified":"2026-05-07T23:04:58","modified_gmt":"2026-05-08T03:04:58","slug":"rencontrez-kailey","status":"publish","type":"post","link":"https:\/\/mitocanada.org\/fr\/rencontrez-kailey\/","title":{"rendered":"Rencontrez Kailey"},"content":{"rendered":"

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Rencontrez Kailey<\/h3>\n<\/div>\n
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Je m’appelle Kailey et je vis \u00e0 Ajax, en Ontario, avec mon mari et mes deux enfants. Mon parcours de diagnostic de la maladie mitochondriale a commenc\u00e9 dans l’enfance et a dur\u00e9 plus de sept ans avant qu’une biopsie musculaire ne me donne enfin des r\u00e9ponses. Plus tard, avec le soutien du Dr Mark Tarnopolsky, j’ai re\u00e7u le diagnostic de CPEO+. En cours de route, j’ai \u00e9t\u00e9 confront\u00e9e \u00e0 la ptose (et \u00e0 quatre op\u00e9rations chirurgicales), \u00e0 la perte de vision, \u00e0 des douleurs chroniques, \u00e0 des probl\u00e8mes respiratoires et \u00e0 la faiblesse musculaire. <\/p>\n

MitoCanada a jou\u00e9 un r\u00f4le tr\u00e8s important dans mon parcours. J’ai assist\u00e9 \u00e0 la toute premi\u00e8re conf\u00e9rence canadienne sur la maladie mitochondriale, j’ai re\u00e7u du soutien pour participer \u00e0 la conf\u00e9rence de l’UMDF aux \u00c9tats-Unis et j’ai fait du b\u00e9n\u00e9volat en tant que pair aidant. Chacune de ces exp\u00e9riences m’a permis de rencontrer des personnes qui comprenaient vraiment ce que je vivais. Aujourd’hui, je suis fi\u00e8re d’\u00eatre ambassadrice de MitoCanada et j’ai h\u00e2te de sensibiliser les gens, de partager mon histoire et de soutenir les autres membres de la communaut\u00e9 mitochondriale. <\/p>\n<\/div>\n<\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"footnotes":""},"categories":[42],"tags":[],"class_list":["post-15834","post","type-post","status-publish","format-standard","hentry","category-non-classifiee"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/mitocanada.org\/fr\/wp-json\/wp\/v2\/posts\/15834","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/mitocanada.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/mitocanada.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/mitocanada.org\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/mitocanada.org\/fr\/wp-json\/wp\/v2\/comments?post=15834"}],"version-history":[{"count":3,"href":"https:\/\/mitocanada.org\/fr\/wp-json\/wp\/v2\/posts\/15834\/revisions"}],"predecessor-version":[{"id":15837,"href":"https:\/\/mitocanada.org\/fr\/wp-json\/wp\/v2\/posts\/15834\/revisions\/15837"}],"wp:attachment":[{"href":"https:\/\/mitocanada.org\/fr\/wp-json\/wp\/v2\/media?parent=15834"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/mitocanada.org\/fr\/wp-json\/wp\/v2\/categories?post=15834"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/mitocanada.org\/fr\/wp-json\/wp\/v2\/tags?post=15834"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}