{"id":10704,"date":"2025-05-15T14:55:49","date_gmt":"2025-05-15T18:55:49","guid":{"rendered":"https:\/\/mitocanada.org\/15-histoires-pour-15-ans-rencontrez-linda-pilon\/"},"modified":"2025-05-16T08:31:36","modified_gmt":"2025-05-16T12:31:36","slug":"15-histoires-pour-15-ans-rencontrez-linda-pilon","status":"publish","type":"post","link":"https:\/\/mitocanada.org\/fr\/15-histoires-pour-15-ans-rencontrez-linda-pilon\/","title":{"rendered":"15 histoires pour 15 ans : Rencontrez Linda Pilon"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1456px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p><span style=\"font-weight: 400;\">Alors que nous c\u00e9l\u00e9brons les 15 ans de MitoCanada, nous partageons les histoires de ceux qui rendent cette communaut\u00e9 si sp\u00e9ciale. Aujourd&rsquo;hui, nous mettons en lumi\u00e8re Linda Pilon &#8211; d\u00e9fenseur passionn\u00e9 de la cause mito, infirmi\u00e8re \u00e0 la retraite, fondatrice de Scott&rsquo;s Ride et m\u00e8re aimante de Scott. <\/span><\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1456px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_2_3 2_3 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:66.666666666667%;--awb-margin-top-large:0px;--awb-spacing-right-large:2.88%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:2.88%;--awb-width-medium:66.666666666667%;--awb-order-medium:0;--awb-spacing-right-medium:2.88%;--awb-spacing-left-medium:2.88%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-2\"><p><span style=\"font-weight: 400;\">Le parcours de Linda avec la maladie mitochondriale a commenc\u00e9 \u00e0 la fin des ann\u00e9es 1970, lorsque son fils Scott a commenc\u00e9 \u00e0 pr\u00e9senter des sympt\u00f4mes inexpliqu\u00e9s. \u00c0 l&rsquo;\u00e2ge de 4 ans, Scott tombait parfois malade apr\u00e8s avoir nag\u00e9, fait du v\u00e9lo ou suivi un cours de gymnastique. En grandissant, ses sympt\u00f4mes se sont aggrav\u00e9s : maux de t\u00eate, perte de poids, crises d&rsquo;\u00e9pilepsie et accidents vasculaires c\u00e9r\u00e9braux qui l&rsquo;ont rendu aveugle. \u00c0 l&rsquo;\u00e2ge de 11 ans, Scott a \u00e9t\u00e9 op\u00e9r\u00e9 d&rsquo;une tumeur c\u00e9r\u00e9brale qui s&rsquo;est av\u00e9r\u00e9e non canc\u00e9reuse. Malheureusement, il est d\u00e9c\u00e9d\u00e9 peu apr\u00e8s une biopsie musculaire. <\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span> <span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">\u00c0 l&rsquo;\u00e9poque, les maladies mitochondriales \u00e9taient pratiquement inconnues. \u00ab\u00a0En 1985, le m\u00e9decin de Scott m&rsquo;a fait part d&rsquo;un article sur le MELAS, une maladie mitochondriale rare\u00a0\u00bb, se souvient Linda. \u00ab\u00a0Il m&rsquo;a dit qu&rsquo;il ne connaissait que trois cas, un en Colombie-Britannique et deux \u00e0 New York. <\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span> <span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">D\u00e9termin\u00e9e \u00e0 sensibiliser le public et \u00e0 honorer l&rsquo;h\u00e9ritage de son fils, Linda a cr\u00e9\u00e9 la Randonn\u00e9e @Scott en 2012 &#8211; en p\u00e9dalant avec sa fille Debbie de Keremeos, en Colombie-Britannique, \u00e0 Toronto, en Ontario, pour soutenir la recherche et la sensibilisation sur les maladies mito\u00efdiennes. \u00ab\u00a0Je devais faire quelque chose\u00a0\u00bb, dit-elle. \u00ab\u00a0Il y avait tellement de gens qui ne savaient m\u00eame pas ce qu&rsquo;\u00e9tait la maladie mitochondriale. <\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span> <span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Depuis, Linda et Debbie ont organis\u00e9 des randonn\u00e9es, des tournois et des activit\u00e9s communautaires, notamment des activit\u00e9s de sensibilisation \u00e0 Kamloops, en Colombie-Britannique (y compris l&rsquo;obtention de proclamations pour la Semaine mondiale de la maladie mitochondriale), des tournois \u00e0 Penticton et la participation au Granfondo de Penticton. <\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span> <span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Qu&rsquo;est-ce qui l&rsquo;inspire le plus \u00e0 propos de MitoCanada ? \u00ab\u00a0Il donne de l&rsquo;espoir aux gens, dit Linda. \u00ab\u00a0Il vous met en contact avec d&rsquo;autres personnes pour que vous sachiez que vous n&rsquo;\u00eates pas seul. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Le message de Linda \u00e0 la communaut\u00e9 Mito ? \u00ab\u00a0N&rsquo;abandonnez jamais. Continuez \u00e0 chercher des r\u00e9ponses\u00a0\u00bb, dit-elle. \u00ab\u00a0Plus vite la maladie est diagnostiqu\u00e9e, plus vite elle peut \u00eatre trait\u00e9e. Plus la recherche et la sensibilisation se d\u00e9veloppent, plus nous nous rapprochons d&rsquo;un rem\u00e8de\u00a0\u00bb. <\/span><\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:15px;margin-bottom:15px;width:100%;\"><\/div><div class=\"fusion-text fusion-text-3\"><p><span style=\"font-weight: 400;\">Rejoignez-nous pour alimenter les 15 prochaines ann\u00e9es. Chaque don nous aide \u00e0 poursuivre ce travail vital et \u00e0 cr\u00e9er un avenir o\u00f9 personne ne sera seul face \u00e0 la mitose. <\/span><br \/>\n<span style=\"font-weight: 400;\">Participez au voyage. Faites un don aujourd&rsquo;hui : <\/span><\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:5px;margin-bottom:5px;width:100%;\"><\/div><div ><a class=\"fusion-button button-flat fusion-button-default-size button-default fusion-button-default button-1 fusion-button-default-span fusion-button-default-type\" target=\"_self\" href=\"https:\/\/mitocanada.org\/fr\/votre-soutien-permet-de-dynamiser-des-vies\/\"><span class=\"fusion-button-text\">Faites un don aujourd&rsquo;hui<\/span><\/a><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_3 1_3 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:33.333333333333%;--awb-margin-top-large:0px;--awb-spacing-right-large:5.76%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:5.76%;--awb-width-medium:33.333333333333%;--awb-order-medium:0;--awb-spacing-right-medium:5.76%;--awb-spacing-left-medium:5.76%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-image-element \" 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https:\/\/mitocanada.org\/wp-content\/uploads\/2025\/05\/IMG_5918-800x800.jpg 800w, https:\/\/mitocanada.org\/wp-content\/uploads\/2025\/05\/IMG_5918.jpg 896w\" sizes=\"(max-width: 640px) 100vw, 600px\" \/><\/span><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-image-element \" style=\"--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-2 hover-type-none\"><img decoding=\"async\" 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