Presented to you by:

The Rare Disease Network of Alberta(rDNA)


Sunday, September 15, 2019
1:00pm – 4:00pm


Patricia A. Whelan Performance Hall
Calgary Public Library, Central Library
800 3 St SE, Calgary, AB T2G 0E7

We will also be streaming this event live on Facebook

It’s FREE to register whether you choose to join us in person or use Facebook LIVE STREAM (the link will be sent to you after registration). Registration is required for this free event. Scroll down this page for the full agenda. 

Register Now! (you will be taken to an Eventbrite page)

Your donations at work: In 2014, with help from a grant from MitoCanada, Dr. Aneal Khan and his team started the MITO-FIND project, which stands for mitochondrial functional and integrative next generation diagnostics, with a goal to use next generation sequencing (NGS) to create a faster and easier path to getting a diagnosis. (To learn more about the program, click here.) 

You can help families get continued access for Mitochondrial Disease DNA sequencing for faster answers, by donating today. 


The MitoCanada Foundation was formed in 2010 to raise awareness, support patients, families and caregivers, and fund research for mitochondrial disease.  The Rare Disease Network of Alberta (rDNA) was formed in 2018 to help people understand more about rare diseases and connect the Alberta rare disease community.

Together, as part of Mitochondrial Disease Awareness Week (September 15-19, 2019), we invite you to join us to learn more about the exciting progress being made and road ahead to find a cure!

Join us for an interactive discussion on the journey that mitochondrial disease is, current research and what the future looks like in terms of innovation and the development of therapies and treatment.

During this afternoon of learning and sharing, you will hear from patients about their experience living with a rare disease and Calgary scientists and clinicians who are on the cutting edge of genetic research.

We look forward to seeing you there!


1 – 1:15 pmBlaine Penny, CEO MitoCanada, “Global mitochondrial disease awareness week and the impact of patient advocacy”.

1:15 – 1:45 pm Dr. Aneal Khan, President of Rare Disease Network of Alberta (rDNA), Professor of Medical Genetics and Pediatrics, Alberta Children’s Hospital Research Institute, Cumming School of Medicine, University of Calgary, Metabolic Diseases Clinic, “A mitochondrial success story: grass roots efforts from patients and their families and the progress achieved in Calgary”.

1:45 – 2:15 pmDr. Timothy Shutt, Assistant Professor, University of Calgary, “Identifying and characterizing novel mitochondrial disease genes and mutations”.

2:15 – 2:45 pmLived Experience: Tanner’s Journey told by his mother Leeanne.

2:45 – 3:15 pm Patient Oriented Research – Speaker TBC

3:15 – 3:45 pm – Mito Challenge – An exciting challenge on how you can make a difference during Mitochondrial Disease Awareness Week (Graham Sherman, Motivational Speaker and co-founder of Tool Shed Brewing Company).

Register Now!