Conferences and Learning Events
MitoCanada is committed to providing opportunities for patients and caregivers, researchers and clinicians to come together to learn, collaborate and be inspired.
Canadian Organization for Rare Disorders (CORD)
Patient Partners Leadership Training
DATE: From September 18, 2020 – February 5, 2021
THIS PROGRAM WILL ENHANCE THE CAPABILITIES OF:
Patients and patient advocates to partner effectively throughout all phases of the drug lifecycle from drug development to real-world usage
Patient relations personnel from various stakeholder groups involved in drug development and access, including primary research, development and testing, regulatory approval and monitoring, value assessment and reimbursement, and real-world management.
Who? Patient Advocates and Patient Partner Leaders from industry and other sectors who are interested in engaging as equal partners in exploration, discovery, and creation of roles as leaders in all phases of the drug lifecycle. Limited to 30 participants.
What? This program will enhance the capabilities of patients, patient advocates, and various stakeholder groups that are involved in drug development and access to partner effectively throughout all phases of the drug lifecycle from drug development to real-world management.
Where? Virtual, 2-hour live sessions (bi-weekly) with interactive small group capabilities that will include structured opportunities comprised of expert presentations from multiple sectors and post-session discussions and written assignments.
LHON Awareness Day Facebook Live Event Recording
The first ever LHON Awareness Day was held on September 19, 2020, and to mark the occassion, International Mito Patients hosted a Facebook Live event: LHON: One Condition, Many Stories.
A group of LHON patients, their parents and representatives from mito organisations around the world participated in a Facebook Live event. The event involved live chats exploring life with LHON, different diagnostic journeys and care provided as well as some inspirational stories of how this group has overcome challenges and been determined not to let LHON stop them.
Webcast Recording
On March 3, 2020, MitoCanada hosted a webcast with clinicians Dr. Aneal Khan and Dr. Mark Tarnopolsky, answering questions patients, families and caregivers had regarding COVID-19 (Coronovirus) and mitochondrial disease.
English
French
