Support and Services

 

Mito-FIND (NextGenSequencing Diagnostics)

Mito-FIND is next generation sequencing for mitochondrial disease. The project facilitates DNA testing for patients who show signs and/or symptoms of mitochondrial disease, as determined by their physician. To learn more or possibly participate in the Mito-FIND project, simply email the Mito-FIND research coordinator. They will review the objectives, inclusion and exclusion criteria with you and provide you with a consent form, if you qualify. MitoCanada has proudly helped support the establishment of this clinic through the funds raised by our supporters. To get started, email: coordinatormagic@telus.net

To visit, click Mito-FIND

 

Peer2Peer Support

MitoCanada has a Peer2Peer Facebook support page with over 60 members. People can communicate within this closed group to ask questions, find resources or to connect with each other. Click here to request joining the group.

 

Mito411 – MitoAction

MitoAction-Mito411 offers live, one to one support, education, advocacy, and a direct connection with someone who understands. Mito411 volunteers speak with callers needing support and share similar experiences on how to live day to day with mito. Call 1-888-MITO-411 (648-6411) to connect with a volunteer who can relate to the journey of diagnosis and the challenges of living with mitochondrial disease. Volunteers are adults with mito, parents of children with mitochondrial disorders, and caregivers. Although volunteers can speak from personal experience and have access to many resources and educational material, medical advice cannot be offered.

MitoCanada has prioritized establishing a similar Mito411 service. If you are interested in becoming a Support volunteer, please contact us at info@mitocanada.org

 

MitoAction Podcasts 

Gain knowledge through the recordings of monthly toll-free teleconferences with expert speakers on topics important to the Mito community. There are more than 100 presentations available with audio resources, slides, and written summaries. Listen Now! 

 

MitoAction | Weekly Support Groups

Get support via these weekly teleconferences for newly diagnosed patients, parents, adult patients and spouses. There are also regular Mito-Autism calls. Connect Now! 

 

Hope Air

Hope Air provides Canadians in financial need with free travel
to medical care far from home. Click here to visit their site to learn more, or request a flight. 

Give-A- Mile

Give-A-Mile is an online ‘not for profit’ that enables people to visit a palliative ill person or people with a life threatening illness through crowdfunding of flights via donations of travel loyalty miles. Click here to visit their site to learn more, or request a flight. 

 

Relay Health

Relay Health is an online portal for patients and healthcare teams to securely communicate and collaborate about any health matter, share vital health information, including documents. To register for this FREE service, click MyRelayHealth

 

MitoAction App

The summer of 2018 welcomed the launch of the very first mitochondrial tracking app. This unique platform will help patients and families manage the complexities of day-to-day care of mitochondrial disease, as well as facilitate patient-physician communications. To download the app, click: MitoAction App