Mito-FIND (NextGenSequencing Diagnostics)
Mito-FIND is next generation sequencing for mitochondrial disease. The project facilitates DNA testing for patients who show signs and/or symptoms of mitochondrial disease, as determined by their physician. To learn more or possibly participate in the Mito-FIND project, simply email the Mito-FIND research coordinator.
MitoCanada has a Peer2Peer Facebook support page with over 60 members. People can communicate within this closed group to ask questions, find resources or to connect with each other.
Mito411 – MitoAction
MitoAction-Mito411 offers live, one to one support, education, advocacy, and a direct connection with someone who understands. Mito411 volunteers speak with callers needing support and share similar experiences on how to live day to day with mito.
MitoCanada has prioritized establishing a similar Mito411 service. If you are interested in becoming a Support volunteer, please contact us at firstname.lastname@example.org
Gain knowledge through the recordings of monthly toll-free teleconferences with expert speakers on topics important to the Mito community. There are more than 100 presentations available with audio resources, slides, and written summaries.
MitoAction | Weekly Support Groups
Get support via these weekly teleconferences for newly diagnosed patients, parents, adult patients and spouses. There are also regular Mito-Autism calls.
Relay Health is an online portal for patients and healthcare teams to securely communicate and collaborate about any health matter, share vital health information, including documents.
The summer of 2018 welcomed the launch of the very first mitochondrial tracking app. This unique platform will help patients and families manage the complexities of day-to-day care of mitochondrial disease, as well as facilitate patient-physician communications.